Once you have chosen a
medical team, you must then work with them to choose a treatment plan.
This is clearly a decision that can profoundly affect your life and the
lives of family members. However, if you are newly diagnosed or have just
discovered you have a recurrence, your mind is on many things and it can
be difficult to understand what a doctor sayseven when you are trying
very hard to listen.
Since you can't make use of information you don't understand,
or that you interpret incorrectly, it is essential you and your doctor
communicate well. To make the best use of your time in the office, here
are some suggestions:
Before each office visit write down any concerns or questions in a small
notebook. If you do not understand the answers, ask again. If you still
don't understand, ask again.
Bring a friend or family member with you when you come to the office,
if you are afraid you will forget what the doctor tells you.
Bring a tape recorder with you to the office so that you can later review
explanations and instructions at your own convenience.
To be assured your questions will be given the attention they deserve,
don't wait until the last minute (such as the night before an operation
or the day before treatment is to begin) to ask important questions. If
you've forgotten something minor, that's okay, we all forget some things
under pressure. However, it is counter-productive to keep putting off
discussing matters that require more lengthy explanations.
If you need to talk with the doctor for an extended time, either by phone
or in person, let the office know in advance, if possible.
Since only you are the one who knows how much pain or discomfort you have,
you need to describe your pain as accurately as possible so that it can
be alleviated. Do not accept pain as an unavoidable nuisance you must
endure.
If you do not clearly remember the instructions or information you were
given when you were in the office, do not guess. Ask the staff to tell
you again. They would rather you repeat a question than have you assume,
for example, that a medication should be taken during meals if that is
when it would be least effective.
Always check with the office to be certain when and under what circumstances
you should get a prescription refilled.
There is a booklet, Teamwork: The Cancer Patients'
Guide to Talking With Your Doctor, by the National Coalition for Cancer
Survivorship (NCCS), 1010 Wayne Ave., 5th Floor, Silver Spring, MD 20910,
(301) 650-8868. Its 32 pages are packed with useful suggestions on how
to best begin and maintain a working relationship with a doctor that is
constructive to both the doctor and the patient. $3 for members of the
NCCS, $4 for non-members.
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